Thursday, February 18, 2010

Round 2

Thanks to all of you who have been leaving me comments, sending me your good vibes, wishes, and prayers. It means so much to me to know that I am in all of your thoughts.

So, here is my update for the day.

Today I went to the follow-up appointment with the surgeons who performed the hysterectomy. I was checked in by a nurse, and then put into an exam room. About 15 minutes later, the same nurse came back in and said that she was going to take my catheter out. Neither surgeon came in to see me. They had no idea that I had spent the previous day in the ER of a different hospital. They had no idea that I was suffering from a bladder infection and even more pain. They didn't even bother to ask how I was doing.
I told the nurse that I wanted to speak with the doctor before we did anything. She moved me to a different room, and after some time, the reconstructive surgeon came in to see me. I explained my trip to the ER, my pain, and my concerns about being able to go to the bathroom after the catheter came out. The doctor responded that he wished I hadn't gone to the ER, b/c the ER doctors are not specialists, and they have no idea when it comes to catheters, raised white blood cell counts in urine, and the resulting bladder spasms. I declined to point out that I first called his office to let them know what was going on BEFORE the trip to the ER, but nobody called me back. He said that I did not in fact have an infection. That the pos result was only pos because I had a catheter in me, and that causes infection-like results. To put it mildly, I did not believe him, nor did I like how he was speaking to me. I went to the ER because I was in horrible pain. What else was I supposed to do? The dr said that he was going to check into all the problems and errors made at the hospital, and that he was sorry I had to go through that. My OB was in the room the entire time, and had very little to say. He looked sheepish and uncomfortable. I think he felt bad, but didn't know quite what to say. The other dr. was more of the PR guy, and seemed mostly interested in covering the hospital's ass.
I asked what would happen if the cath was removed and I couldn't pee, and he said that they would reverse cath me first, and make sure I could expel the fluid before they sent me home. I was told that the chance of me not being able to go after that was slim to none, but if it happened, I was to go to the ER again to be cathed. (Like I haven't been cathed enough already).
Fluid was put into my bladder, cath was removed, and I was able to urinate. Success!
I was sent on my merry way with instructions to follow up in 6 weeks.

Keith and I headed directly to the Cleve Clinic for my urology appointment that I was instructed to make during my ER visit on Wednesday.
By the time we got there, checked in, and sat down in the waiting room, I was in terrible pain. Again. And I had to pee. I got up from my wheelchair and walked to the bathroom, where I sat for 10 minutes, trying to pee. And I couldn't. Simply taking the cath out had made me swell up again, and I was unable to pass any urine.

I tried once more in the waiting room, and 3 times after I went back to the exam room. After filling the urologist in on everything that had happened since Monday, we decided the best thing to do would be to teach me how to self-cath so that I wouldn't have to go to the ER every time I couldn't void, and I would be able to keep the cath out of me constantly so my bladder and urethra could heal. By the time the teaching nurse made it to our room to instruct me on self-cathing, I REALLY had to pee. I had to pee so badly, I felt sick from the pain. My earlier pain was magnified by 10, at least.

The nurse decided she would cath me to give me relief, and then teach me how to do it myself. She couldn't even pass the cath into me b/c I was so raw, tender, and swollen. And when she tried, I SCREAMED. I'm NOT a sissy or wimp when it comes to pain, but my reaction was involuntary from the sheer pain that I was feeling. It felt like somebody was stabbing me repeatedly and ripping a knife through my vagina. I lost it. The nurse felt awful and ran to get the doctor to cath me herself. She kept apologizing, saying "you poor thing. They really did some major trauma to you with catheters, didn't they?"
When I stopped hyperventilating, the doctor gave the cath a go, and was able to get it in, although I still sobbed and screamed the whole time. It felt like I was being ripped in half. The nurse and doctor were definitely rattled.
The doctor decided that because of all the damage done to me, I would have to keep the cath in for 2 weeks while I gave my body a chance to heal. Only then would she be able to do the tests necessary to determine the level of damage done to me by the metro nurses.

So, That is where I'm at now. More pain meds. An uncomfortable catheter in me that I have to keep for a few more weeks, minimum. After I heal enough, I have to get a cytoscopy done (camera in bladder) and a bunch of other tests to check the function and repairs necessary to get my urinary system back on track.

Till then, I have to rest, keep the catheter clean, and let my body do its job.


  1. Oh my god, I'm so freaking pissed for you right now.

    I'm so sorry you're going through all this and I hope you're feeling better soon.

    My offer to hold your pee for you still stands.

  2. I am so truly sorry that you have been put through this hell! I hope that you are able to find some relief soon and that those asshats who put you through this get what is coming to them !

  3. I am so upset right now that I just almost can't type this. I have never heard of such incompetence in my entire life. God love your little heart baby, and although it doesn't seem like it now, you will heal and all this will be behind you. I pray that it is over soon honeypie. I love you.

  4. What a freaking nightmare. I keep hoping something positive will happen but they just keep torturing you, my sweet friend! I am so sorry!! I'm glad I'll be there in just one day to take care of you! I love you girl. Keep your head up.

  5. I am so sorry this had to happen to you. I hope you get some relief soon, and that things heal up. And when you do, hunt down those incompetent idiots and triple-cath them!

  6. Not that my opinion matters or anything, but I would stick with urology and get yourself a new OB. I would never go back to those first two again. Period. The fact that they told you they 'wished you hadn't gone to the ER' sealed the deal. You don't have choices when you are in that much pain. Grrrr. I still want to kick some ass.

  7. I won't say I feel your pain, nor can I understand any of this. I CAN say I am so sorry to read all this and all the pain you are going through. All I can say is I hope somebody does something RIGHT. Soon. And you can one day pee freely. Anywhere and everywhere.

  8. I am seriously considering going to Law School so that I can sue the crap out of that hospital. I am flabbergasted. Sending you lots and lots of get well wishes and prayers. Keep us posted and rest up!

  9. I am so sorry you've been going through all this madness. I truly hope you heal up soon!!

    I am not a litigious person but this calls for some definite action. They are absolutely ridiculous!! Something must be done or they'll keep on doing the same to others. This is not a simple mistake that they're trying to cover up. This is out right horrible treatment and malpractice!

    Best wishes for your speedy recovery!

  10. Jesus, what has happened to you is so wrong. I hate when doctors pull the PR shit. It is wrong on so many levels. I hope over the next two weeks you can heal and this will no longer be a problem. I am just so sorry you are going through this whole thing.

  11. As someone with her own history of really fucked up medical drama, I can so relate and I am also incredibly pissed off on your behalf. Maybe you should accidentally slip us the names of the doctors so we can all write them letters telling them in wonderful detail what we would like to do to THEIR urethras.

    Shit, girl. Hang in there. This too shall pass - you know - or at least that's what they tell us.


  12. I'm so so so sorry to hear this. Please don't go back to that hospital or those doctors. Even if your OB was great before surgery, his reaction to your mistreatment should have been bringing the pain to those nurses who treated you like that. Yeah, I just went WWE...BAM. But seriously. The fact that you, your pain and your health aren't put first, the hospital and any potential claims to liability were what was on his mind speaks volumes about what kind of doctor he truly is. Stick with the new clinic and heal up! Praying for you!!!

  13. Unfrickin believable! I'm so sorry for this entire situation! What a mess! I hope you heal quickly and get back on track.

  14. Oh sweetie, it just makes me so sick what you are going through. I hope you heal quickly and can get some relief from the pain. I'll be thinking about you and sending you healing vibes.

  15. I am so sorry that things just keeps getting worse. I hope you are over the worst of it and will heal quickly... I am thinking and praying for you and sending you lots of love and happy healing thoughts..

    gentle hug dear friend. =-)

  16. I am so upset for you! The incompetence of all doctors involved makes my blood boil. I pray that you are able to be as comfortable as possible in the coming weeks. We're all here for you! *hugs*

  17. Sorry, reconstructive surgeon - but a freaking Urologist has said that your baldder was f'd up by the tramua. How is that not a specailist's opinion? He was just trying to CYA after discharging you in such awful condition then having his office ignore your calls for help.

    GAH! This makes me so mad for you, I hope the meds and cath help you heal and get back to normal. You've been through hell

  18. OH MY GOD, sara, i read this and want to cry for you while also punching a hole through the wall. this just keeps getting more and more wrong on so many levels.

    i'm so glad to see that you are documenting everything, though you are still in so much pain and enduring a lot, you sound very level-headed as you are describing what has taken place and what continues to take place, and that can only work out in your favor.

    much love and light sent to your vag. heal heal heal....

    love you lots.

  19. Jeebus christ! Sara I am so sorry! I wish I could do something for you. Get as much rest as possible mama. HUGS HUGS HUGS

  20. OMFG I am so sorry this has happened to you. I just found your blog today but I was crying for you as I read this.

  21. Oh my sweet girl. I am so happy that you have been met with only asshats this entire time. I'm so sorry you're in pain. That this was so much worse than it should have been. I've been seeing all of this one twitter, so I've known what is going on, but it's different to see it all here, post after post as I catch up. :(